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The journey of my family's struggle with a Brain Tumor. Cancer Sucks but the days continue so we must continue on as well... with a fight!

Thursday, May 26, 2011

Thankful...


So I don't have any updates on Todd.. he's still trucking along and feeling the same.

We here at the Bloomfield house have had a long and crazy week. First of all, Todd's cousin, Judy (57) died suddenly. This was a complete shock to the family. Next, (not deep at all) Tyler finished up at the Elementary School he's attended for 6 years... This school/teachers have been a solid rock to our family. I was with many other mothers on the last day as we wiped tears and watched our children get ready to start a new adventure. Lastly, we learned that 2, not 1, of our friends were having marital issues and possibly ending with divorce. With all the issues, I have had plenty of time to think about life and the trials and tribulations of being a wife, mother, daughter, friend, co-worker, etc... (Yes, a little deep for me)

Anywho... I come to the THANKFUL post. I decided to list out 50 things that I am Thankful for. (in no particular order, just how they have popped into my head)

1. God has been by our side and he's giving us challenges that are keeping us on our toes. He's put us where we are for a reason and someday we will know His objectives.
2. We've decided to search for a family church together
3. Still searching for a church and it doesn't feel like a chore

Work...
6. I have a job that is M-F
7. Excellent and understanding boss
8. A place to work that is fun and rewarding
9. Everyday I laugh at work
10. Excellent Co-workers that actually work
11. A coworker that loves to hug and has inspired me to hug others
12. Todd gets a card from a VF store once a week-most of the people he don't know :)
13. His current co-workers send him a text at least once a day or send him a facebook message
14. Tusculum has a great vacation plan and I will be able to take time off over the summer to play
15. Todds work is looking forward to him coming back

Friends
16. I have a BFF that's been by my side for almost 20 years. Yes, 20... and I called her a BFF, LOL.
17. I met a new friend from her that I see sticking around for a long time
18. Todd has a select few friends that check in on him weekly
19. Todd was invited to go on a golf outing :)even though he can't golf anymore :(
20. We have great caring neighbors. Yes, we have a crazy one but... the rest outweigh the crazy one
21. Old coworkers that have turned into friends that I dearly treasure
22. I have a great network of friends that I could call at almost a drop of hat.. many of them I could call in an instant
23. People accept that Todd is introverted and I am not!
24. We have another family that loves to hang out with us, vacation with us or just sit on the couch with us... conversation is always good and funny!
25. I have never met a stranger

Family
26. Todd is functioning on his own.
27. In August we will celebrate our 14th wedding anniversary and this month marks our 20th year of being together
27. Tyler is well rounded (for the most part, lol) and he enjoys life to the fullest
28. I talk to my mom everyday
29. We have 3 sets of parents that are still alive
30. I still have a grandmother and Tyler has a great grandmother alive
31. We have family within a 20 minute drive
32. Todd's brother lives less than a mile down the road
33. We have a roof over our head and we've been safe from all the storms
34. We have a new sister-in-law who makes Todd's brother happy
35. Todd's mom is still alive and an active grandparent even after battling cancer for 15+ years

Mom and wife
36. See #27
37. Tyler still loves his momma and thinks I'm kinda cool
38. Todd thinks Tyler is a spitting personality image of me
39. Now when I come home from work, Todd has dinner ready, laundry done and cleaned. (not a gourmet meal, not laundry perfectly folded, not a spotless house but an attempt to do what he can do even with mobility issues)
40. We can sit on the couch and be fully engulfed in REALITY tv together
41. Tyler has been by my side throughout the entire Todd situation
42. I can talk to Tyler like an adult
43. Todd accepts me for the crazy things I do and he puts me in place when I have crossed a boundary
44. We all tell each other we love each other every night
45. We make a great team... the 3 of us

Misc... Tyler's thoughts
46. School is over and summer is here
47. Friends, trees-for oxygen, food and a place to sleep and US as parents
48. Electronics
49. Technology

50. That I could come up with 50 things to be Thankful for and it only took me an hour.

Wow, it was much harder to come up with a list than I thought... I've been thinking about this all week and it seemed easy. I guess bottom line is we all think we have bad stuff going on in our lives but in the big picture, there are lots of good things. Sometime we just need a reason to remember.

In ending... I hope we all can take a few minutes to be thankful. There really are lots of reasons to be. My #51 reason and most importantly... my family




Friday, May 20, 2011

Tyler Update

Just a quick update on Tyler... Yesterday he fell at school and the teacher called to say she thought something was broken in his hand/fingers. Todd was already home from his Dr's appointment so he went to go get him... Ty was still crying so off to the ER they went.

At Childrens Hospital they did xrays and discovered the metacarpals had a small fracture. Todd texted me this picture. I thought it was precious but it also made me chuckle becuase we are dealing with a finger... not an arm. :) Afterwards, the Dr. came in and told Todd and Ty that the sling was not necessary but to keep it. However, they did want Tyler to see an Orthopedic Dr to make sure it did not need surgery or pins. When Ty left, he had a sling and a mini-casted hand... I met the boys at Knoxville Orthopedic Center and after review of the xrays, the Dr said for him to take it easy over the weekend and by Monday he should be alright... So, no cast and off he went.

Now, how did he do it... He was swinging on a swing and trying to do a back flip. Not sure I understand how that can be done but apparently it can be... but not by Tyler! I am thankful that he didn't break his neck.

Thanks for all the well wishes yesterday... We are all fine and dandy.


Tuesday, May 17, 2011

Week Update 5/17

Hey Guys... I'm going to give a quick update. Who am I fooling, I can't do it quick! Last time I wrote I was telling you about us not being able to go on a mini trip... Well that bummed us out but it was for the best! Friday was Tyler's field day and Todd and I both planned on going to watch him. When Todd woke up on Friday, he said he felt nauseous and said he would meet up with me later at school. He wound up staying home the entire day home and resting. I was sad only because it was Tyler's last year of elementary school and Todd missed it but... you do what you gotta do!

I've posted some pics at field day.. They kinda crack me up. I sat in awe of how the kids have grown up over the past years. The teary part for me (its a mom thing) is that most of these kids have stuck side by side since kindergarten and this era is ending for them. I can't wait to see what the next era brings. I love being able to watch my child grow in addition to all his other buddies... it's amazing!

Tyler was in the sack race, hula-hoop contest and the dizzy bat race... what happened to the traditional games?



Yes, crazy hair...






This was his first place finish team... All but one he has been in class with since K.



Tyler's 5th Grade Teacher... Ms. Turner



Ty and his buddies. The one is the black shirt is his 'friend'. LOL...


Ty and Sarah, his 'friend'


Ok... the real reason you are reading.. you want to know about Todd. :) So, Todd was icky feeling on Friday. On Saturday he told me he was bored and wanted to get out of the house. He chaperoned me around while I ran errands and we ended up going grocery shopping. After a few hours once again, he was dog tired. We went home where he rested on the couch. While out shopping, we received a call from his buddy in Florida-Steven. He told us that he had a few extra airline miles and would like to come on Monday... We said 'come on' and I could tell that Todd was excited. Afterall, we just had to cancel a weekend trip and lets face it, Todd's days are kinda boring.


I think I pushed the Todd envelope too far on Sunday. We had to clean becuase if you know us... our house IS NOT company ready. We tagged teamed and eventually got it cleaned but I could tell Todd was 'foggy' and having some vision issues. We relaxed for a few hours and then decided to go strawberry picking. On our way there our great friends the Rupekas called and said they wanted to join us so... off we all went. I was in strawberry natzi mode but when I looked over at Todd I could see he was struggling. He let me know that he couldn't see and it was time for him to stop. Boo.... It seems that when he gets tired or pushed himself too far, his double vision is coming back. He said that the berry patch was one big blur.. Boo again! (We did manage to get almost 8 lbs of strawberries)


I guess we are learning that as much as we want to be a 'normal' family and do 'normal' activities, we have to be more cautious. Kinda sucky but I will take that any day as long as we are doing it all together!


Todd picked up Steve early Monday morning and he left last night (Tuesday). I can't tell him enough how thankful I am he came. He brought my family back to life.... They/We laughed and played games (ps3) like we did months ago. Because of Todd's limited hand mobility, he hadn't played with Ty in months. Steve played with Ty and by yesterday afternoon, Steve encouraged Todd to give it a try. When I came home, Todd was playing! Not a biggie to some but golf was taken away and recently video games so seeing him playing the video games was a sigh of relief. It surely is the small things in life that make you go hummmm....


I think I heard through the grapevine that Steve and his family might be coming in June for a few day visit. If we can't travel to see them (Orlando) then they are more than welcome to come see us!


Well, thats the weekly wrap up... Todd has a dr's appt tomorrow but it is only for bloodwork. Unless something has dropped, he will continue on the same path. I will post if there are any new changes.


A quick shout out to his VF team.... Thanks for all the cards we've been receiving. I know there are some days he receives 3-4 cards. One person sends one bi-weekly! Just letting him know he has support helps him to continue on. I have lots of support and I think sometimes he feels out in the cold-whether he will admit that or not! LOL....


Lastly, I would LOVE LOVE LOVE to know who is visiting the blog. IF you don't mind, please drop us a comment. The nosey person in me is dying to see where all the visits come from. :)



Thanks everyone!!!







Tuesday, May 10, 2011

Long Overdue Update

Sorry guys... I've been busy with work and Mother's Day weekend. I have finally found a moment to sit down and update... I knew I had to get it updated pretty soon because I am running into people around town, some I haven't seen in years, and they tell me the blog isn't updated. HAAA.

Todd's scan results came back last week and we were told 'no significant' change. In the brain tumor world, to us that is pretty good news. We can't expect miracles overnight! Dr. Desjardins emailed me a few times on the next plan of action and then she spoke to Todd on Monday. The new plan is to add just a bit more dosage and continue on a every day treatment cycle. His bloodwork came back just a smidge off but nothing that was too alarming. She said they would discuss it again after the next round if it was 'off' too. I believe that Todd is on Temodar (chemo) for the rest of the year and if at any point she feels like the tumor is not responding, she will add another mix to the prescription.

Todd's feeling pretty crappy... to say the least. He's functioning and functioning pretty well but he just doesn't feel good. I know he is 'enjoying' the much needed time off from work but I wish it was for other reasons. :) He is not able to do much and it saddens me. My goal for him is to eventually play golf again. At this point, golf isn't even in the conversation... He can't use his arm to swing nor could he do the walking. A few months ago, he told me to sell his clubs. I was telling one of his golf buddies about the conversation and he made me promise not to sell them. So... we will hold on to them with high hopes of being used SOON!

We had planned to go on a weekend 'trip' with some family and that was cut short due to the Dr. telling Todd that she didn't want him to travel. It bummed me out a bit however Todd is my first priority. It's amazing how we now have to consider the smallest things now when it comes to him...snotty noses, upset stomachs, travel distance, shopping buggies, etc... Hand sanitizer is a new best friend.

I feel like I keep telling everyone the same thing over and over... I wish I had something new and exciting but... not this week. :)

Todd's mom is feeling pretty good as she is continuing with her chemo as well.. Please keep all of us in your prayers. We have a lot going on. Thanks everyone (will do better about updating this week)!!!

Tuesday, May 3, 2011

Tomorrow....

Tomorrow is a scan for Todd. This is always one of those nights/days that I lose sleep on, lol... His scan is at 7:15, so bright and early. From there he will overnight the disk to Dr. Desjardins in hopes of hearing the 'results' on Thursday.

There are a few different scenarios:
1. Tumor is GONE and he can quit chemo (wishful thinking)
2. Tumor is stable and he continues on the path of the chemo 28 days
3. Tumor has not responded and they add another mix to the plan

Either way, we will with the flow and continue along. I will post as soon I we hear from Dr. Desjardins. We always welcome any and all prayers. In addition to Todd, please add Todd's mom. She just started another round of chemo... she's been struggling with cancer for as long as I can remember. (We just can't catch a break)

Thanks all!