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The journey of my family's struggle with a Brain Tumor. Cancer Sucks but the days continue so we must continue on as well... with a fight!

Thursday, February 28, 2008

Wednesday and Thursday

Not sure what day number it is because the center had to reschedule 2 of Todd's appointments. Anyways, Todd met with Dr. Malyapa on Wednesday and he told Todd that Wednesday was the half way point-I thought we had already reached that! Anyways, he Dr. Malyapa took Todd off the steroids. He told Todd that he noticed that he face with swollen, due to the steroids. He also said that him and Todd would talk frequently and if he was feeling bad then maybe they would start back on the steroids again. Who knows

I spoke with Todd today and he told me that he was feeling the worst that he has felt since he started on the treatment. I asked how he was feeling and he said "Tired, upset stomach, and headache." He thinks it was because he came off the steroids. What is he to do? Feel bad on the drugs or feel bad off the drugs? He told me that if he continues to feel this way thru the weekend then he would ask to be put back on them on Monday.

I thought about rearranging my work schedule this weekend and surprising him on Saturday but I think it is best not to take Tyler out of school any extra days next week. If he seems to be feeling crappy, I might take off by myself and leave Tyler at Greg and Angie's for Monday/Tuesday. I haven't told them that yet, but we will see-I can't leave Todd there all by himself to feel sick. Not sure what I am going to do.

Tyler had major life meltdown on Wednesday night and Thursday morning before school. I kept asking what was wrong and he kept saying "I'm frustrated." We went up and snuggled in bed and talked. In the end, he told me that he was ready for Daddy to come home. The guy has been such a trooper in all of this and I guess it was time for him to let it all out. He did tell me that he has been meeting with the Guidance Counselor at school weekly just to talk about "life." I am so glad that the school has been supportive of us. Speaking of school, We went to a roller skating event tonight and I ran into a mom that I knew. She asked about Todd and told me that her son told her that Tyler's dad went to Florida to have surgery on his head and have part of his brain removed......cute. It made me chuckle a little because that is how a 7 year old interpreted things.

I will update again on Saturday or so. Keep Todd in your prayers that he gets feeling better!!!

Tuesday, February 26, 2008

The begin of week 4

I think anyways...LOL. Wow, the time has really flown by! Todd made it back to Jacksonville very easily yesterday-Monday. He took the 6 am flight and was in Florida by 10 am. I can't believe how easy it was for him.

I have talked to him several times today and he was incredibly tired. I think he took a few cat naps. He told me he felt like it was because he had 2 treatment with in 12 hours of each other. Dr. Malyapa was already gone last night and had some scheduling issues this morning so they told Todd that he would meet with him tomorrow. I sure hope he takes him off the steroids!!!

Nothing else is new, I feel like I am telling everyone the same things every day but I know many of you like to hear the daily updates. We are so blessed to have friends and family this concerned-Thanks!!!

Sunday, February 24, 2008

Everyday Question

My everyday question from EVERYONE is "How is Todd feeling?" The answer is: Tired, Grouchy, Tired, and more Grouchy. He is on a steroid that sets his mood off very quickly. I think he has had road rage too...LOL I know that this will all be over soon and he will be back to his ole self-nice and laid back.

I think he rested well this weekend so that is good. Hopefully, he can get back into his routine by Tuesday and get his life settled back down. All 3 of us have been on the go with him since last Thursday so maybe some boredom would be good.

Thanks for everyone asking, we greatly appreciate it!

The weekend has come to an end.

Todd will be flying back to Jacksonville tomorrow morning. Once again, he is flying standby. I just went to Delta website and all morning flights are full so.....he is going to try and catch the 6 am flight. He is going to take the car to the airport and then my good friend Amy will take me to get the car-what a rig-a-ma-roo. Luckily, I am off tomorrow and have NOTHING to do. Todd's treatment is the last appointment of the day and it will be at 10:45 PM.

I will update more on Tuesday after his appointment with Dr. Malyapa. Thanks everyone!!! Keep praying.

Thursday, February 21, 2008

All of us are home together for a few days!!!

Tyler and I made it home-finally-on Wednesday. It took several full flights but we finally arrived around 1pm. Tyler went to daycare and I went to work. Today, Thursday, Todd had his appointment at 6:40 and then went straight to the airport. The first flight was full but he made it on the second flight. The one to Knoxville only had 1 left seat-some one was on our side! Yippee!!! The center is closed tomorrow for Admin day and his appointment was changed on Monday to 10:45 PM, yes that late. So, I think he will have a nice long weekend at home!

We are all home together for the next few nights. The dogs, especially Levi is so happy to see him. He has not left his side! Tonight, we are going to be lazy and do our usual Thursday night things....pj's on by 7:30, Survivor at 8 and Apprentice at 9. LOL. Can't wait. Todd is excited about sleeping in his own bed. I do have to work all weekend so I think Todd will spend a lot of time with his brother, Greg. I know that they are getting together on Saturday to watch the UT vs. Memphis basketball game.

Thats it for now. A shout out to everyone who has been on our sides and saying prayers. I/We have received lots of cards and some gifts. So thanks to everyone!!!

Tuesday, February 19, 2008

Our St. Augustine visit

On Monday, We took Tyler to the Nations oldest city for a history lesson :). We stopped by the outlets on the way and then we ran over to see Todd's friend, Randy. We told Randy that we were taking Tyler to see the Fort and he gave us free passes to ride the train. The Red Train took us around the entire city of St. Augustine and gave us the history and showed us the important landmarks of the city. We all enjoyed the ride very much. I was amazed at what I learned. This train ride was 1 1/2 hours long and I kept asking Tyler if he was bored and he kept saying "No", he actually said he like hearing about the "stuff" LOL.
I created a slide show of some of our pictures-I think there are 15 or so pictures, the landmarks were beautiful and old....The picture of the big tree is a 600 yr old tree. It sits in front of the Fountain of Youth. What a great time we had on our trip to St. Augustine-Thanks Randy!!!

Todd's Address

Here it is again:

Todd Bloomfield

400 East Bay St. Suite 603

Jacksonville, FL 32202

I want to thank EVERYONE who has sent me or Todd a card. We greatly appreciate it.

Here we go again.

Well, here we go again. Tyler and I *tried* to catch a flight out of Jacksonville today. Actually we tried for 4 flights and all were booked going to Atlanta and Cincinnati. I finally put our name on the 7:50 pm flight but my friend who got us the buddy passes just called and said for us not even to go because the flight before has 63 people on stand-by and those people will overflow to the 7:50 flight. We will attempt to catch the 6 am flight to Atlanta in the morning and then run home, change clothes, drop Tyler off to school and then go to work. What a long day tomorrow is going to be for the 2 of us. Tyler has been an EXCELLENT travel companion.

Lesson learned, don't travel on buddy passes during holiday weekends or major sporting events-Daytona 500.I guess now, I can upload lots of pictures to the blog and work on that this evening.

Tyler did have STREP.

After a long and very boring weekend-the doctor from the Minute Clinic(on Monday) called said that his test that was sent off came back positive for strep. You could definitely tell that he was not himself on Saturday-we tried to go to the 2008 Car show. He made it about 1 hr before saying he felt bad. Then again on Sunday, he was very slow moving till around 5 pm. We went out to dinner and he said he was feeling better. Monday rolled around and he felt like a new child. We went to St. Augustine for the day-post and pics to come

So between Saturday and Sunday, we did not get out of our pj's till around 3 each day and we rented 4 movies, all which stunk! What a boring weekend but now we are all very well rested. :)

Day 11 and 12

Day 11: Bright and early-6:40 am-Todd made it to his appointment. Tyler and I did not go. On Monday, he spoke with Dr. Malyapa about his sleeping issues. He has not been sleeping or getting up around 4 AM and the blame is on the steroid he was taking. Dr. Malyapa took him off the evening dose and told him to see if that would work. Other than that, things went well.

Day 12: Todd did not take the steroid pill last night and he slept great, or better! Treatment went well as usual.

The patch is 100% gone. Well, he lost it but he still has not had the need to use it. Hopefully, something is working in there! Keep praying.